Monthly Archives: January 2016

Letter to CDC and ALDF (American Lyme Disease Foundation) critical of their description for Lyme being a “nuisance disease” and using manipulated “evidence-based” clinical trials to fit a predetermined outcome’

From: “Carl Tuttle” <runagain@comcast.net>
To: “Sylvia Burwell” <Sylvia.Burwell@hhs.gov>
Cc: txf2@cdc.gov, cvu0@cdc.gov, eib6@cdc.gov
Sent: Tuesday, December 29, 2015 12:55:25 PM
Subject: Phillip Baker and the 21st Century Plague

Dec 29, 2015

Centers for Disease Control

Atlanta, GA

To members of the CDC;

We need to know why this life-altering infection has been misclassified as a simple nuisance disease and then swept under the rug. Without a congressional investigation highlighting this question the deception will continue indefinitely.

This thirty year deception to the American people (and now the world) will come to an end in 2016 as a growing worldwide disabled Lyme community is looking for indictments. Please see the letter below addressed to the Executive Director of the American Lyme Disease Foundation.

Carl Tuttle

Phillip Baker and the 21st Century Plague

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/14500086

 

Dec 6, 2015

American Lyme Disease Foundation, Inc.
P.O. Box 466
Lyme, CT 06371
Attn: Phillip J. Baker, Ph.D., Executive Director
Email: Executivedir@aldf.com

To: Phillip Baker,

I would like to call attention to your statement found in the following ALDF document:

From the Desk of the Executive Director:

Ending the Lyme Disease Wars
http://www.aldf.com/wp-content/themes/ALDF/pdf/Ending_the_Lyme_Wars_2.pdf

Quote from Phillip Baker:

“To conduct a clinical trial of such magnitude for an infectious disease that is neither fatal nor life-threatening would be enormously expensive….”

On December 13, 2013, The CDC published a report describing three cases of sudden cardiac death associated with Lyme carditis.
http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6249a1.htm?s_cid=mm6249a1_w

From the CDC report:

“None were known to have had a tick bite and none had usual stigmata of Lyme disease such as erythema migrans.” (Bulls-eye rash)

Three seemingly healthy individuals dropped dead from heart failure where there were no warning signs of disease. It is important to recognize here that the cause of death was only identified due to the fact that the three Lyme patients were potential organ donors otherwise these cases would not have been identified or reported. We have to ask the question, “How many seemingly healthy Lyme patients have donated blood?” (Our blood supply is not screened for Lyme disease)

Other Fatal/Life-threatening studies:

1. Lyme disease: A case report of a 17-year old male with fatal Lyme carditis
http://www.cardiovascularpathology.com/article/S1054-8807(15)00025-3/abstract?rss=yes
We describe a case of a 17-year-old adolescent who died unexpectedly after a 2-week viral-like syndrome. Postmortem examination was remarkable for diffuse pancarditis characterized by extensive infiltrates of lymphocytes and focal interstitial fibrosis. In the cardiac tissue, Borrelia burgdorferi was identified via special stains, immunohistochemistry and PCR.

2. Fatal Lyme carditis and endodermal heterotopia of the atrioventricular node.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2429516/
A fatal case of Lyme carditis occurring in a Suffolk farm worker is reported. Post-mortem examination of the heart showed pericarditis, focal myocarditis and prominent endocardial and interstitial fibrosis

3. Fatal pancarditis in a patient with coexistent Lyme disease and babesiosis. Demonstration of spirochetes in the myocardium.
http://www.ncbi.nlm.nih.gov/pubmed/4040723
A 66-year-old man developed fever, chills, myalgias, three erythematous skin lesions, and transient left eyelid lag. Because of persistent fever, he was hospitalized 4 weeks after the onset of disease; a peripheral blood smear showed Babesia microti in 3% of his erythrocytes. Eighteen hours later, he died unexpectedly. Autopsy showed pancarditis with a diffuse lymphoplasmacytic infiltrate, and spirochetes were found in the myocardium.

4. Lyme borreliosis as a cause of myocarditis and heart muscle disease.
http://www.ncbi.nlm.nih.gov/pubmed/1915460
These findings give further evidence that LB is associated with chronic heart muscle disease.

5. Cardiac Lyme disease – case report – A Fatality confirmed with Autopsy PCR study
http://umaryland.pure.elsevier.com/en/publications/postmortem-confirmation-of-lyme-carditis-with-polymerase-chain-reaction%2896d9181d-9d52-4fc7-9149-287cd0123f84%29.html
We describe the case of a 37-year-old Caucasian man with a 1-month history of fevers, rash, and malaise who died unexpectedly on the day after he underwent medical evaluation.

6. Unclassified cardiomyopathy or Lyme carditis? A three year follow-up.
http://www.ncbi.nlm.nih.gov/pubmed/23575786
We present the case of a 41 year-old Caucasian woman referred to our hospital with symptoms of fatigue, progressive exertional dyspnoea, supraventricular cardiac arrhythmia, and an enlarged heart revealed on chest radiography

7. Professor Neil Spector: Duke physician uses near-death experience to encourage patient self-advocacy
http://www.dukechronicle.com/articles/2015/05/28/duke-physician-uses-near-death-experience-encourage-patient-self-advocacy#.VYlYnxtViko
Duke University Professor Neil Spector required a heart transplant after experiencing four years of undiagnosed-untreated Lyme disease.

8. Lyme Deaths From Heart Inflammation Likely Worse Than We Thought
http://www.forbes.com/sites/judystone/2015/09/04/lyme-deaths-from-heart-inflammation-likely-worse-than-we-thought/

9. FISH method using Molecular Beacon DNA probes to directly visualize with a microscope, Disease producing Borrelia in Body tissues.
https://www.gofundme.com/7tbbf5zw
In this case a 19 month old male died (unknown causes) and a Medical Examiner Autopsy was performed. At the request of the parents, glass slides from the medical examiner’s office were sent to me from the autopsy heart and autopsy brain. FISH methods demonstrated an overwhelming number of Borrelia spirochetes in both Heart and in Brain. Conclusion: Cause of Death: Overwhelming Borrelia infection, not considered by the physicians caring for the child.
__________________________________________

Lyme disease is a life altering infection when not treated immediately but has been misclassified as a simple nuisance disease; easily treated with a one-size-fits-all treatment guideline. [1] There appears to be a deliberate and coordinated downplay of the seriousness of Lyme disease with its life altering consequences. [2]

A recent taxpayer funded NIH study designed by Dr Gary Wormser of New York Medical College is one example of the ongoing effort to downplay the seriousness of Lyme disease as he excludes the sickest of patients focusing on the acute stage of disease after early treatment. The deceptive results of his study is then assumed to apply to the entire patient population giving the impression that Lyme is a simple nuisance disease and patients who are severely disabled are somehow delusional. A complaint was registered with the Office of Research Integrity. [3]

Wormser’s inaccurate conceptualization of disease (and personal bias) has influenced the nation’s perceptions and response to Lyme disease. We are dealing with a life altering infection misclassified as a simple nuisance disease as reported by the Lyme patient population (and the scientific literature) for the past thirty years.

As this epidemic continues to spiral out of control we are hearing stories of death, [4] total disability and suicide. Celebrities have come forward with their stories as well: Amy Tan, [5] Singer Averil Livigne, [6] Real Housewives of Beverly Hills star Yolanda Foster, [7] Rebecca Wells [8] and Ashley Olsen. [9]

Quote from Senator Richard Blumenthal: “Today for me culminates more than a decade of work and probably a decade more, because I’ve seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease”
Source: http://ctmirror.org/2011/07/18/blumenthal-takes-lyme-disease-fight-senate/

There is an overwhelming mountain of evidence indicating that we have been dealing with an antibiotic resistant/tolerant superbug [10] deceptively concealed by the CDC, Infectious Diseases Society of America and American Lyme Disease Foundation. (Collusion) [11]

Suppressed evidence:

Peer Reviewed Evidence of Persistence of Lyme Disease Spirochete Borrelia burgdorferi and Tick-Borne Diseases
http://www.ilads.org/ilads_news/wp-content/uploads/2015/09/EvidenceofPersistence-V2.pdf

Over 31,500 individuals from across America and twenty one countries have signed the petition calling for a congressional investigation into the deliberate and well orchestrated mishandling of Lyme disease. [12]

The mishandling of Lyme disease by the CDC, IDSA and ALDF has been commonly referred to as a thee-ring circus and you Philip Baker have been identified as a ring leader.

Carl Tuttle
Hudson, NH

When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science?

Cc: Senators Blumenthal, Ayotte, Gibson, Hannon, Serino and Bonacic. Countess MAR, member of the House of Lords and Senator Mckenzie Parliament of Australia

 

REFERENCES:
_____________________________

1. Lyme is not your average “Nuisance Disease”
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/11340872

2. Lyme Patient Advocates Document Misinformation Campaign by IDSA Guidelines Panelists
http://www.reuters.com/article/2015/10/07/patient-centered-care-idUSnPnq0BkH+45+PRN20151007#MuE7iL0KugrsARIZ.97

3. Scientific misconduct or criminal offense?
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/14006106

4. Maryland Lyme Disease Memorial Site
https://sites.google.com/site/marylandlyme/memorial-page

5. Amy Tan: SLyme Disease: How A Speck Changed My Life Forever
http://www.humanthology.com/lyme-disease/2014/9/15/slyme-disease-how-a-speck-changed-my-life-forever

6. Averil Lavine: Averil Lavigne Opens Up About Her Health Crisis: ‘I Was Bedridden for 5 Months’
http://www.people.com/article/avril-lavigne-lyme-disease-bedridden

7. Yolanda Foster: Yolanda Foster on Lyme Disease: I’ve Lost Ability to Read, Write, Watch TV
http://www.usmagazine.com/celebrity-news/news/yolanda-foster-on-lyme-disease-ive-lost-ability-to-read-write-201519

8. Rebecca Wells, battling Lyme disease, translates her illness in ‘Ya-Ya Sisterhood’ sequel
http://www.seacoastonline.com/article/20050331/News/303319961

9. Grim Prognosis: Ashley Olsen’s ‘Symptoms Have Gotten Worse’ In Her Fight With Debilitating Lyme Disease
http://radaronline.com/celebrity-news/ashley-olsen-lyme-disease-prognosis-worsens/

10. Researchers’ discovery may explain difficulty in treating Lyme disease
http://www.northeastern.edu/news/2015/06/researchers-discovery-may-explain-difficulty-in-treating-lyme-disease/

11. “COLLUSION” to deny a disease; chronic Lyme
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/10701985

12. Calling for a Congressional investigation of the CDC, IDSA and ALDF
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf