Mary Jo M. Dales
Editor in Chief
IMNG Medical Media
Dear Mary Jo,
In Evidence-based medicine, (EBM) medical treatment remains subject to patient values so why do the CDC and IDSA refuse to listen to the patient voice concerning Lyme disease?; to intentionally avoid the “inconvenient truths”.
The following “inconvenient truths” are heard at Lyme disease support group meetings:
1. The vast majority of patients do not develop the bulls-eye rash.
2. The two stage testing (Elisa followed by Western blot) recommended by the CDC and IDSA is not working. Most patients are negative by Elisa but positive on Western blot.
3. Patients are often ping ponged through the medical community for years before obtaining a diagnosis due to the insufficiently educated (confused) medical community regarding the diagnosis of Lyme disease.
4. Short term treatment of antibiotics as recommended by the IDSA does not address the late stage Lyme patient and is less than adequate for the acute stage.
5. Lyme patients are misdiagnosed with the chronic diseases of our time; Multiple Sclerosis, Lupus, Lou Gehrig’s, disease, Parkinson’s, Alzheimer’s disease, Chronic Fatigue Syndrome and Fibromyalgia.
6. Lyme patients are never informed of the two standards of care for treating the disease; IDSA vs. ILADS.
Deliberately avoiding the inconvenient truths has been an effective campaign to mislead a medical community and the public but Senator Blumenthal believes Lyme patients should have a voice and is currently collecting testimonies from across America. Ignore patient complaints and you can deny the late stage Lyme epidemic indefinitely.
When obtaining medical advice for Lyme disease be sure to ask the question, “Have you ever treated the late stage Lyme patient?